My Aunt (JC) wrote to me telling me of her experience with sunlight sensitivity.
JC said that as a child of 9-10 she was the first in their family to suffer with terrible stomach aches and a severe sensitivity to sunlight. Furthermore since her change of life she is no longer sensitive to sunlight. Aunty J infomed me of the South African world leader in Porphyria: Dr Hift a well known researcher in South Africa had said that losing sun sensitivity after change of life can happen as a normal course of this disease.
My Aunt said that her mother (my maternal grandmother) only became sensitive to sunlight in her early 40's. I remember my grandmother suffering from terrible "nerve pains" which she complained of consistently most of the time I knew her.